Down Syndrome Legislation Proposed

HARRISBURG –Sen. Randy Vulakovich of Allegheny and Butler Counties introduced legislation that would ensure that expectant mothers who receive a prenatal diagnosis for Down Syndrome receive the support and education they need to care for and enhance the quality of life for their child. Senate Bill 1339, also known as the Down Syndrome Prenatal Education Act, sets requirements for health care professionals and the state Department of Health to provide essential guidance for those expectant mothers. Under the measure, the Department of Health would make available up-to-date, evidence-based information about Down Syndrome that has been reviewed by medical experts and national Down Syndrome organizations. The information would include physical, developmental, educational and psychosocial outcomes; life expectancy; clinical course; intellectual and functional development; and treatment options. It’s called “Chloe’s Law” after Chloe Kondrich, a child with Down Syndrome and Sen. Vulakovich’s inspiration for the bill, who said, “I am very intelligent and sophisticated and I was made perfect.” Similar legislation has been signed into law in Kentucky and Massachusetts. The bill has received support from Pennsylvania’s Physician General, the Arc of Pennsylvania, the Central PA Down Syndrome Awareness Group, the Eastern PA Down Syndrome Center, and other groups.

SEN. RANDY VULAKOVICH

SEN. RANDY VULAKOVICH

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